Research   We understand that reliable information and support can be hard to find, especially for rare disorders. Selected links are provided here to supplement those on the Research Interests page of this site. We recommend that families and individuals consult directly with their healthcare providers for information and guidance specific to their condition.   » Research Interests   » Genes Identified   » Research Collaborations   » Publications   » Resources     Resources GENERAL REFERENCE Brain Anatomy: An illustration and description of the brain and its structures. GeneTests: A publically funded resource providing information on medical genetics and available laboratory testing and clinical services. *           Educational Materials           Illustrated Glossary of medical genetic terms           Autosomal Recessive Inheritance           Autosomal Dominant Inheritance           X-Linked Recessive Inheritance Online Mendelian Inheritance in Man (OMIM): A database of human genes and genetic conditions. * PubMed: PubMed is a searchable library containing more than 20 million citations for biomedical journal articles and online books. * These sites are targeted to healthcare providers and researchers. NATIONAL ORGANIZATIONS Genetic Alliance National Dissemination Center for Children with Disabilities National Institutes of Health National Institute of Neurological Disorders and Stroke National Organization for Rare Disorders, Inc. National Society of Genetic Counselors US Department of Health and Human Services (DHHS) DHHS Office for Human Research Protections BOSTON AREA ORGANIZATIONS Beth Israel Deaconess Medical Center Broad Institute Children's Hospital Boston Federation for Children with Special Needs - Massachusetts Harvard Medical School Massachusetts Office of Health and Human Services CONDITION-SPECIFIC RESOURCES AND SUPPORT NETWORKS Agenesis of the Corpus Callosum Network Agenesis of the corpus callosum - Yahoo Group National Organization for Disorders of the Corpus Callosum Autism Society of America Autism Speaks Autism Support Center Chromosome Deletion Outreach Epilepsy-Kids: Parents of children with epilepsy - Yahoo Group Epilepsy Foundation of America Hemimegalencephaly - Yahoo Group Joubert Syndrome and Related Disorders Foundation Lissencephaly - Yahoo Group Lissencephaly Launch Pad Microcephaly - Yahoo Group Foundation for Children with Microcephaly Polymicrogyria - Yahoo Group Schiz Kids Subcortical Band Heterotopia (Double Cortex Syndrome) - Yahoo Group Walker Warburg Syndrome - Yahoo Group The links to other websites on this page and their content are not meant to replace consultation with a healthcare provider and do not represent expressed endorsement of their organizations or the accuracy of their subject matter.

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