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Internet Resources
Sources of Information and Support
Genetests
www.genetests.org
PubMed
http://www.ncbi.nlm.nih.gov/entrez
Online Mendelian Inheritance in Man
http://www.ncbi.nlm.nih.gov/omim/
National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov/
National Organization for Rare Disorders, Inc.
www.rarediseases.org
Epilepsy Foundation of America
www.efa.org
Orphanet- international information
http://www.orpha.net/consor/cgi-bin/home.php?Lng=GB
Atlas of Fetal MRI images- Beth Israel Deaconess Medical Center
Radiology
http://bidmc.harvard.edu/content/departments/radiology/files/fetalatlas/brain/brain.html
Services for Children with Special Needs
Children's Hemiplegia and Stroke Association
http://www.hemikids.org/
National Dissemination Center for Children with Disabilities
http://www.nichcy.org/
Children with Disabilities- federal and state resources
http://www.childrenwithdisabilities.ncjrs.org/
A Parent’s Guide to Helping Kids with Learning Difficulties
http://www.schwablearning.org/index.asp
Federation for Children with Special Needs- Massachusetts
http://www.fcsn.org/
Wrightslaw- Information about Special Education Law and Advocacy
http://www.wrightslaw.com/
Sources of Support
Lissencephaly Launch Pad
http://homepage.ntlworld.com/foliot/liss/
Lissencephaly Contact Group
http://www.lissencephaly.org.uk/index.htm
Schiz Kids
http://www.schizkidzbuddies.com/
Chromosome Deletion Outreach
http://www.chromodisorder.org/
MUMS Parent-to-Parent Network
http://www.netnet.net/mums/
Agenesis of the Corpus Callosum Network
http://www.familyvillage.wisc.edu/lib_agcc.htm
Periventricular heterotopia family contact
http://www.faithsfriends.org
Online Mailing Lists
Lissencephaly
http://health.groups.yahoo.com/group/lissencephaly/
Polymicrogyria
http://health.groups.yahoo.com/group/polymicrogyria/
Walker Warburg Syndrome
http://health.groups.yahoo.com/group/walkerwarburg/
Subcortical Band Heterotopia (Double Cortex Syndrome)
http://health.groups.yahoo.com/group/SubcorticalBandHeterotopia/
Miller Dieker Syndrome
http://groups.yahoo.com/group/millerdieker/
Hemimegalencephaly
http://groups.yahoo.com/group/hemimegalencephaly/
Microcephaly
http://health.groups.yahoo.com/group/microcephalysupportgroup/
http://groups.yahoo.com/group/microcephaly/
Agenesis of the corpus callosum
http://health.groups.yahoo.com/group/Agenesis_of_Corpus_Callosum/
Parents of children with epilepsy
http://health.groups.yahoo.com/group/epilepsy-kids/
Adults with epilepsy
http://health.groups.yahoo.com/group/adultswithepilepsy/
For professional caregivers of children with lissencephaly
http://health.groups.yahoo.com/group/lissencephaly-pro/
For those who have lost a child to a rare condition
http://health.groups.yahoo.com/group/LissAngels/
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